CureSPG50 is dedicated in helping children and there families affected by SPG50 lead better lives

 

As such we offer support to children and their families to help pay in part or all of the below funding needs. This is re-evaluated on a yearly basis and depends on many factors. We ask that parents of children affected by SPG50 living in Canada please email info@curespg50.com the details and needs and we will be in contact within 1 week to determine next steps.

​

• Costs not fully paid for by ADP/Government agencies or Insurance for adaptive and supportive devices.  •

• Repairs to wheelchairs or assistive devices not paid for by ADP/Government agencies or Insurance.

• Home modifications (Showers, Ramps, Lifts, Elevators, etc) not paid for by ADP/Government agencies or Insurance.

• Vehicle modifications not paid for by ADP/Government agencies or Insurance.

• Travel expense to see a specialist or to receive treatment.

• Expenses for drugs and or treatment approved by a Dr. but not funded by Government agencies or Insurance.

​

All support services need to be recommended by a Dr. or professional in order to be accepted by the board for approval. 

​

We hope this funding will help improve the lives of children affected by this terrible disease and the families reduce the extensive financial and emotional burden taken on both.​